Registry
On our wedding day, all we ask is the gift of your presence. Should you wish to send a gift, please consider a donation to website below in honor of Emilee Ann Hunter. Emilee is our precious granddaughter that was diagnosed in Feb 2019 with an extremely rare genetic syndrome called KBG. Less than 600 people worldwide have been diagnosed with this syndrome so funding for research is heavily needed. Living day to day with KBG means lots of therapies, doctor appts, medicines, surgeries & support of surrounding loved ones. Her parents fought hard for her diagnosis and now work with a team of specialist to research, learn and grow to ensure that their daughter will thrive in this world. She has the greatest chance at living her best life because these two are relentless. The promotion of KBG awareness would be helping Emilee in her fight because, after all, NO ONE FIGHTS ALONE! https://gf.me/u/x6jd97